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Valproate Victims
Fighting for safety policies that work for the public: not businesses and politicians. Patients, victims, families first.


It's not straightforward
Last week I did an interview that lasted 5 hours, just me, talking. I had plenty more to say. My conversations with other campaigners...
Susan Valproate Victims
Dec 28, 2022


The Cost of Concealment: Why the Failure of Clinical Candour Demands Full Redress
The Cost of Concealment: Why the Failure of Clinical Candour Demands Full Redress When public authorities and corporate structures look at a major public health disaster like the Sodium Valproate scandal, they hide behind a single, sanitised word: complexity. They claim that designing a redress scheme is "too complicated" because the victim community is not a monolith, encompassing different cohorts, varying eras of law, and vastly different levels of lifelong neurodevelopmen
Susan Valproate Victims
5 days ago


Fifty Times
Since my daughter's diagnosis of fetal Valproate syndrome, I've been determined to understand how a harmful congenital syndrome could be...
Susan Valproate Victims
Mar 5, 2025


An MP’s Guide to Responding to a Constituent Affected by Valproate
Having been a constituent of Keir Starmer’s for many years, on and off, I’ve been curious about his approach to justice. As a lawyer he...
Susan Valproate Victims
Aug 26, 2024


Epistemic what??? a response to the Hughes Report
To use a baking analogy, the Hughes report was a bit of a part built triple layer cake. Mostly vanilla and satisfying, doing what it...
Susan Valproate Victims
Feb 29, 2024


Repurposing
It was dubbed the Wonderdrug back in the 70s as it worked so well and could be taken along with the contraceptive pill. Wondrous indeed...
Susan Valproate Victims
Feb 4, 2024


Does redress always mean respect?
This piece was drafted in 2022 but not published. On 7th February 2024 a proposal for redress for those adversely affected by pelvic...
Susan Valproate Victims
Jan 17, 2024


What do we know about medicines in pregnancy?
When I started asking questions, around 2003, I first talked to a health journalist I knew. She told me that in order to prove that...
Susan Valproate Victims
Dec 19, 2023


The K-Word
People on the ketogenic diet usually don’t talk about it because of the reactions received from others. They chat secretly on forums,...
Susan Valproate Victims
Dec 14, 2023


DNA Matters
In my 20 plus years of work on valproate as the mother of a person affected and campaigner I could say that I’ve got the subject just...
Susan Valproate Victims
Jul 17, 2023


Not exhaustive, just exhausting
In a recent meeting with DHSC, PSC and NHSE I realised that I’d finally lost patience. To be honest I’d lost it many years before. ...
Susan Valproate Victims
Apr 30, 2023
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